The Tale of the Beautiful Soul 

This soul came to us as an Infant 
Concieved in the deepest of love 
In the stillness of our hospital room 
Came a quiet thought from above 

"You can not keep her." said the still small voice 
"She is only here for a little while." 
Tears filled my eyes as I held her close 
I wiped them, and forced a smile 

This Babe was so delightful 
Bouncey, loving , and smart 
A laugh that came from her belly 
Eyes that told you her heart 

This toddler was fair haired and curly 
She was giggley and gutsy and kind 
She loved animals and people and flowers 
And had no trouble speaking her mind 

This child began to have problems 
School was not what she thought it would be 
But she could run like the wind, play with her friends, 
And swim like a fish in the sea 

This adolescent was quite different 
She was moody and tearful and all 
But it just seemed perfectly normal 
Until the unusual fall 

This time was painful for her 
She was subject of taunting and tease 
Until the day she finally asked 
"Can we go to a doctor, please?" 

This moment, I knew the answer 
I remembered what that voice had said 
" This lovely person has Huntington's!!" 
The thought burst into my head 

This doctor just confirmed it 
And I just wanted to cry 
She was just sixteen and surprised me 
Saying " I live my life a day at a time and when I die, I die." 

This teenager was such fun 
She loved football games, NASCAR , and rock 
She loved clothes, make-up , pizza, boys, 
And New Kids on the Block 

This young woman was a beauty 
Eyes wide and round as a moon 
That learned to talk all by themselves 
And a smile that lit up a room 

This disease was brutal and heartless 
From learning, to walking, and more 
It took its toll on the Beautiful Soul 
And took her toward Heaven's door 

This body was frail and tired 
As I held her in my arms 
My tears falling on her pallid face 
As she said "I love you, Mom." 

This Mother felt blessed and humble 
Such a courageous soul to know 
And said to her, "Don't wait for me." 
"I'll be along...so, go.." 

In the quiet of early morning 
When she was all alone 
The Beautiful Soul left us 
We know that...  she went Home 

Huntington's used that body 
It rendered it fragile and old 
But it never quenched the grace and love 
Brought to us by the Beautiful soul 

This world may think me crazy 
I no longer care 
I speak all the time to the Beautiful  Soul 
Because I KNOW she's there 

This heart of mine knows now 
That beyond this earth there is more 
God sent to us the Beautiful Soul 
And now she's with him beyond Heaven's door 

Cheryl Brown 
October 10, 2000 
Of My daughter , Kimberly